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Home / Publications / Essentially Yours: The Protection of Human Genetic Information in Australia (ALRC Report 96) / 18. Human Genetic Research Databases

Essentially Yours: The Protection of Human Genetic Information in Australia (ALRC Report 96)
Executive Summary
List of Recommendations
01. Introduction to the Inquiry
02. Genetics and Human Health: A Primer
03. Coming to Terms with Genetic Information
04. Planning for the Future
05. A Human Genetics Commission of Australia
06. Ethical Considerations
07. Information and Health Privacy Law
08. Privacy of Genetic Samples
09. Anti-Discrimination Law
10. Genetic Testing
11. Regulating Access to Genetic Testing
12. A New Criminal Offence
13. The Regulation of Human Genetic Research
14. Enforcing Compliance with the National Statement
15. Human Genetic Research and Consent
16. Encouraging Best Practice in Human Genetic Research
17. Strengthening Review by HRECs
18. Human Genetic Research Databases
19. Human Tissue Collections
20. Ownership of Samples and the Human Tissue Acts
21. Health Professionals and Family Genetic Information
22. Genetic Registers and Family Genetic Information
23. Genetic Counselling and Medical Education
24. Population Genetic Screening
25. The Use of Genetic Information in Insurance
26. Genetic Discrimination in Insurance
27. Improving the Underwriting Process
28. Insurance and Genetic Privacy
29. The Use of Genetic Information in Employment
30. Genetic Discrimination in Employment
31. Inherent Requirements of the Job
32. Occupational Health and Safety
33. Workers’ Compensation
34. Employment and Genetic Privacy
35. Parentage Testing
36. Kinship and Identity
37. Immigration
38. Sport
39. Forensic Uses of Genetic Information
40. Harmonisation of Forensic Procedures Legislation
41. Criminal Investigations
42. Identification of Deceased Persons
43. DNA Database Systems
44. Criminal Proceedings
45. Post-Conviction Use of DNA Evidence
46. Civil Proceedings

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28.07.2010

18. Human Genetic Research Databases

In this section

Introduction
What are human genetic research databases?
Regulation of human genetic research databases
The need for reform
Options for reform
The gene trustee
Secondary uses of research databases

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