Policy Transparency, Genetic Counselling and the Required Legal Infrastructure
Presentation by Professor David Weisbrot, President of the Australian Law Reform Commission, to the Symposium on ‘The Legal Implications of Biobanking: An Initial Review of the Legal Infrastructure Development of Taiwan’s Pilot Project’, 8 August 2005. Synopsis Following the sequencing success of the Human Genome Project, research into population genetics is likely to bring the next generation of …
Read moreGene patenting
In December 2002, the federal Attorney-General asked the ALRC to examine the laws and practices governing intellectual property rights over genetic materials and related technologies, with a particular focus on human health issues.Given the diversity of interests and concerns encompassed by these three areas, the ALRC’s task was a complex and delicate one. For example, …
Read moreGenes and Ingenuity: Gene patenting and human health (ALRC Report 99)
The Genes and Ingenuity report (tabled August 2004) is the product of an extensive research and community consultation effort over 18 months.The ALRC’s task was to examine whether the Australian patent system was meeting the challenges of the rapidly developing science associated with the sequencing of the human genome.Given the diversity of interests and concerns …
Read moreGene Patenting and Human Health (DP 68)
Gene Patenting and Human Health (DP 68) was released in March 2004, the second consultation document to be produced during this inquiry.View DP 68 in HTML on the AustLII website
Read moreThe Kirby Oration – The Human Genome: Lessons for Life, Love and the Law
Professor David Weisbrot, President, Australian Law Reform Commission The 8th AIHLE Annual Conference, Hobart, 20 November 2003 First, thank you very much to the Board of the Australian Institute of Health Law and Ethics (AIHLE) and the organisers of this conference, for the great honour of being invited to deliver the opening address. It is …
Read moreGene Patenting and Human Health (IP 27)
The ALRC released an Issues Paper, Gene Patenting and Human Health (IP 27) in July 2003, which defined the scope of the inquiry and outlined questions for discussion.A further consultation paper of the same name ( DP 68) was released in March 2004. View IP 27 in HTMLon the AustLII website.
Read moreEssentially Yours: The Protection of Human Genetic Information in Australia (ALRC Report 96)
ALRC Report 96 (tabled May 2003) was the product of a two-year inquiry by the ALRC and the Australian Health Ethics Committee (AHEC) of the NHMRC, involving extensive research and widespread public consultation.The inquiry was the most comprehensive ever undertaken into these issues in Australia or overseas.The report covers an extensive range of activities in …
Read moreProtection of human genetic information
The terms of reference directed the ALRC and the Australian Health Ethics Committee (AHEC) to consider, with respect to human genetic information and the samples from which such information is derived, how best to:protect privacy;protect against unfair discrimination; andensure the highest ethical standards in research and practice.The experience of the inquiry, mirrored overseas, is that …
Read moreProtection of Human Genetic Information (DP 66)
DP 66 (released August 2002) is the second of two consultation documents published in the course of the inquiry. View DP 66 in HTMLon the AustLII website.
Read moreProtection of Human Genetic Information (IP 26)
The release in November 2001 of the inquiry’s Issues Paper—Protection of Human Genetic Information (IP 26)—signalled the start of extensive national consultations, which included public meetings in every State and Territory capital, as well as in several regional centres. The release of a Discussion Paper of the same name (DP 66) followed in August 2002. …
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